The Dementia Community Research Advisory Panel
The Dementia Community-Research Advisory Panel (DC-RAP) is an international panel of people with lived experiences of dementia committed to sharing insights and knowledge to advance dementia-related research. The panel was established as part of the GBHI Person and Public Voice (PPV) project which aims to ensure that the voice of people with lived experience of dementia is central to the work and activities of GBHI.
The diverse and inclusive panel is made up of people living with dementia, carers, and former carers of people living with dementia, as well as people at variable risk of dementia.
DC-RAP enthusiastically collaborates with GBHI faculty, staff, and the Atlantic Fellows for Equity in Brain Health to assist in PPV training and capacity building. The panel welcomes invitations to co-create and review training materials and research projects, in addition to dementia-related communications outputs.
DC-RAP is here to help!
DC-RAP encourages and empowers its members to have a voice in research and advocacy to drive change in areas where they have the greatest experience and which affect people with lived experience of dementia the most.
DC-RAP believes in the following values:
- Integrity and Authenticity
The purpose of the panel is to provide guidance on:
- Setting research priorities
- Planning and managing research studies
- Communicating findings
- Putting results into practice
- Reviewing dementia-related communications and articles
DC-RAP invites Atlantic Fellows for Equity in Brain Health, GBHI staff, and faculty to consult the panel for input and thoughts and to co-create with them. To get started contact Abhisweta Bhattacharjee at email@example.com.
Interested in getting involved?
We would love to hear from you if you are a person with lived experience of dementia (a person living with dementia or a carer or former carer for a person living with dementia) or at risk of dementia, and would like to be a part of the panel.
If you are interested in getting involved please email Project Coordinator, Abhisweta Bhattacharjee at firstname.lastname@example.org.
Developed by the DC-RAP panel at GBHI, “Words and Images to Use in Dementia and Caregiving” is a guide to dementia-friendly language and images. The purpose of the guide is to promote the use of inclusive and non-stigmatizing language when talking or writing with or about people living with dementia. You can view it here.