Preferences of Older People With a Life-Limiting Illness: A Discrete Choice Experiment

Journal of pain and symptom management

J Pain Symptom Manage. 2022 Aug;64(2):137-145. doi: 10.1016/j.jpainsymman.2022.04.180. Epub 2022 Apr 29.

ABSTRACT

CONTEXT: There is limited evidence about which elements and characteristics of palliative care service provision improve the experiences of older people living with life-limiting illness.

OBJECTIVES: To evaluate older patients' (≥65 years) preferences for elements of services and supports and to explore relationships between patient characteristics and the patterns of preferences.

METHODS: A cross-sectional survey undertaken in Ireland and England using a Discrete Choice Experiment with people accessing specialist palliative care services. A random-effects probit model was used to estimate patient preferences.

RESULTS: Of the 77 patients were interviewed, 51 participated in the Discrete Choice Experiment component of the interview (response rate = 66%). Participants prioritized support that minimized unpaid caregiver burden (P < 0.001). They also preferred ease of access to services including out-of-hours access (P < 0.001) and free care at home (P < 0.001). Quality of life was prioritized over quantity of life (<0.001).

CONCLUSION: People living with a life-limiting illness value care that focuses on quality of life, ensures barrier-free access to services and provides sufficient support for relatives. In the context of limited resources and growing demand for care, this study provides evidence about the service elements palliative care delivery models should prioritize and evaluate.

PMID:35490993 | DOI:10.1016/j.jpainsymman.2022.04.180

Authors

Bridget M Johnston
Barbara Daveson
Charles Normand
Karen Ryan
Melinda Smith
Regina McQuillan
Irene Higginson
Lucy Selman
Katy Tobin
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